Welcome to my Blog.

These are my ramblings in an attempt try and understand my Dissociative Identity Disorder. Thank you for reading my blog and I hope that together we can come to a better understanding of the human mind. If you have any questions or comments you are more than welcome to add them to my blog, or to email me. I would love to hear from you.

28 April, 2012

Lend me your Hope

This Poem spoke to how I so often feel.


Lend me your hope for a while,
I seem to have mislaid mine.
Lost and hopeless feelings accompany me daily,
Pain and confusion are my companions.

I know not where to turn;
looking ahead to future times does not bring forth images of renewed hope.
I see troubled times,
painful days and more tragedy.

Lend me your hope for a while,
I seem to have mislaid mine.
Stand by me,
offer me your presence, your heart and your love.

Acknowledge my pain,
it is so real and ever present
I am overwhelmed
with sad and conflicting thoughts.

 Lend me your hope for a while,
A time will come when I will heal,
and I will share my renewal,
hope and love with others.
                     
               by Author unknown

From the Book- Victory over the darkness by Neil T Anderson.

26 April, 2012

DID a video

This is a beautifully portrayed message of what DID is.

http://youtu.be/9URiwU98VPo

I hope it helps with your understanding of this Disorder.

24 April, 2012

My inner Child.

This morning was not an easy morning. Yesterday had been a long day as I was awake at 4.30am until 9.30pm last night. I was hoping I would be able to get a good long sleep last night to catch up on what I had missed out on the night before. What I wasn't expecting was to sleep as long as I did. I had a lot of trouble waking up this morning. I ended up sleeping for  14 hours and could easily have slept for many more.
I knew when I had to get up to take my son to school it was not going to be easy and it took way more effort than I was expecting. You see this wasn't like normal tiredness, in fact I really didn't feel that tired. My mind was lost in the dream world. To me the dream world was far more real than the real world and it was also warm and peaceful and happy and everything within me wanted to stay there. I had been dreaming an interesting dream and I just didn't want to leave. I had to, of course, get my son off to school.
Once I got back home I headed straight for the bed again and was asleep again within a few minutes. Back in that world that I longed for so strongly. My husband came home about 11.30am and I had to get him to force me out of the bed. Again this wasn't tiredness, I didn't feel that sleepy, I just felt like I was lost in another place in  my mind and it was taking all my energy to get out. I could very well have stayed in bed for several more hours, but I have places I have to be today and things I need to do.
I struggled to get myself going and headed outside for some sunshine to try to help me 'wake up'. The world around me just seemed so ugly and uninviting. My dream world felt warm, safe, interesting and home. By this stage I knew that something was happening involving my alters, they are the only thing that make me feel like this. Disconnected from the real world, and I was actually seeing my house differently. Not how I usually see it, it looked less comforting, it looked messy, and like I really did not want to be here.
It took me a while of making myself keep moving and NOT  heading back to the bedroom before I found out what was happening. It was an alter. I presume a younger one, only because of what she said. She told me that every day I just get up and work and it was no fun. At least in her dream world it was a fun place to be and there wasn't any work to do. She had conveyed her message, made it very clear and then left. It is better to live in the fun of dream world than to be bored in the real world of an adult.  I can still feel her hanging around not far from the surface, but at least she is not in control at the moment. She is kind of right really. I do spend most days doing some kind of work. There is always washing, cleaning, gardening or my Dolls to work on and I never make time for the 'fun' things a child would like. I really don't make time for much fun at all. I enjoy making my dolls but obviously that is not enjoyed by every one inside. I think it is time to incorporate some colouring or drawing into my day, and maybe even some fun at the park.
I forget I have children inside and they don't want to live the adult life. It was easier when my sons were younger, I would spend time playing with them and it satisfied my internal children as well. Now they are teenagers I don't spend much time playing. I guess I need to spend more time entertaining my inner children and giving them play and fun.
One of the many joys of being a Multiple.


20 April, 2012

The Mentally Ill are scary

I am feeling much better today, than my last post. While I am still experiencing some dissociation,(not uncommon for me most days) mostly it is the anesthetic. I am feeling more connected to the world around me but I am still dealing with the fatigue. I have bought some St Mary's Thistle which will help my liver to clean out the anesthetic.
 I managed to go to Bridges today and socialize, which was great. It has been over a month since I was last there and I have been missing the interaction immensely.
Today is also exciting for me as my Blog has reached over 1000 page views. Thanks to everyone who is signing in to hear my ramblings. It is so great to know that people (other than those in my head) are interested in what I have to say.
Thanks again, I really appreciate your interest.

I have been reading a post  that Sarah put on her blog today, it is very helpful, and I decided to include it here. Should we be afraid of Psychotic people?
Sarah gives a great explanation of what life is like for these people and how it can often be hard to know what to do if some one like this is around you. We can all fear what we don't understand, and I confess that some of the 'strange' people at the bus stop who dress daggy and talk to themselves freak me out a bit. I hope they wont talk to me, what do I say to them, why cant they just be crazy somewhere else? I know that for people who have little understanding of mental illness, someone with DID is not that different from the 'crazies' at the bus stop. We don't know what this DID person is going to do, or say and then how do I react to them, its embarrassing and awkward. ( and yes there have been times when I talk to myself and I forget I am in public)
When I first told my family about my diagnosis there were, of course, mixed responses. One that shocked me the most came from my then 17 year old son who wanted to know if I was now going to attack him with a knife. He had been watching a movie about someone with DID killing people and getting away with it because they didn't remember doing it. He was genuinely concerned for his safety. The fact that I had lovingly raised him his whole life and I was just not even close to that sort of person didn't even enter into his mind. 'You have DID therefore you are dangerous' was all that he could think, because that is all he knew from bad representations in Hollywood films. He is fine with it all now, and understands that I have been DID most of my life and definitely all of his, so if I was going to knife him I would probably have done it by now. Most people I know with DID are much more likely to self harm in some way than to hurt others.
My point is that we all have some sort of prejudice against people with Mental illness. We all fear what we don't understand. We all wonder if that crazy person down the street is going to kill me because the voices told him too. But we don't have to. As Sarah says here, we can become part of the solution not the problem.

"Social support is one of the most crucial factors in the recovery and management of experiences like psychosis. When we are afraid and shun people with these experiences, we are the ones who set the stage for the possibility that some of them will become completely lost, walking labyrinths in their mind with no string to guide them home. The best way to reduce the risk of violence has always been to love. If you know someone who struggles with psychosis, don't be afraid. Be loving, trustworthy, compassionate, and wise. You are at no greater risk of being harmed by a strange neighbour who rants at people you can't see and wanders about barefoot in the small hours of the night, than you are from your perfectly normal seeming neighbour on the other side. If you remember that and you behave that way, you are part of the work to reduce the stigma and help people with these experiences to still feel part of the human race. That can only ever be a good thing. If you're serious about reducing the risk of violence, you will work to strengthen community and include people who experience psychosis."

We are all human and many of us have been through some incredibly hard times. Maybe that person you see is crazy is only reacting to the trauma they have been through and if you were in their shoes you too would be acting that way. We need compassion. In the past we used to lock the 'insane' in a mental hospital and do horrible things to them. We are not slightly more enlightened. We now call it what it is, a Mental Illness and we understand that these people are ill in the similar sort of way a diabetic gets ill. They have bad times and better times. Their illness can make them act strangely at times but in the end they are only after the exact same things as us, LOVE AND ACCEPTANCE. I am not suggesting giving them a hug, but sometimes a smile and not walking away might just help instead of hurt.


I highly recommend reading Sarah's post (the link is above) whether you are interested in Psychosis or not. It is a very interesting and informative view into life with a mental illness.

15 April, 2012

Anesthetics or Dissociation.

 I have had a bit of a hard time today getting over the affects of the anesthetic. I have suffered with fatigue and feeling rather vague. I haven't had much to do today so that has made it easier. I find at this time it is always hard to tell if it is the anesthetic or the dissociation that is causing me to be a bit vague. I have been feeling like I am not connected to the world and that I am living in my own world distant from others. Yes this is what I would guess to be a normal response to being sedated but it can also be dissociation. It is very hard to know what is what. What I have been through the last few days would definitely cause dissociation but so would anesthetic.
Tonight at dinner time I tried to break through to see if it really was dissociation. I could barely taste the food I was eating and I had no idea if I was getting full or not. I felt like I just wanted to go back to my room and sleep. I persisted and pushed through to a stage where I now have energy and feel much more alert. It is one of those joys of being a dissociative is not being quite sure weather you are still slightly drugged or  just off in your dissociation.

14 April, 2012

"Baby"

I had an out patient hospital procedure yesterday. All went well and I am currently resting at home.
As many of you will know I am not particularly good with hospitals. As a baby I had to undergo several operations on my cleft lip before the age of 3. I therefore have an alter we call 'Baby'.
 Baby is so young she is preverbal, so cannot not communicate with words. When I was in hospital a few months ago I got my first chance to get to know Baby. She was very scared and didn't understand what was happening to her. I did my best to try and comfort her but there isn't much that can be done waiting to go into surgery, when you too are scared and really have no idea how to help this tiny alter who can't do much but lay there terrified.
This time I was expecting to have her come out and I had spent  quite a bit of time before the procedure talking all my scared Alters through what was going to be happening. I had taken my soft toy and my hubby had stayed with me as long as I needed him too. Besides the last half hour before they came to get me, I actually felt reasonably calm and as yet hadn't seem much of Baby's arrival.
After the procedure I was tired and sore and it took them a while to feel ready to discharge me. I was home in my own bed by tea time, and due to only 3 hours sleep the night before, I was fast asleep in minutes.
 I slept very soundly for several hours, not even moving a muscle. Hubby brought me some dinner later in the night which I ate but it didn't stay down long. Back to sleep again for several hours after more pain killers. This is where the fun began.
After sleeping soundly for hours I kept getting woken with my mouth making a strange sucking movement. I cant even replicate it now but it was persistent. I kept trying to go back to sleep but it kept waking me up. I would get up and go to the toilet, have a drink and try to sleep. I would doze but this sucking persisted. Eventually it occurred to me it was like what a baby would do if they were wanting a feed.
Ahh Baby. I got up and had a few crackers in the hope that would make her happy. Sure enough we went back to sleep for several hours after that. Again I was woken with this persistent sucking movement. She was hungry again. Some more crackers, a drink and pain killers and back to sleep. This went on several times.
At one stage I was feeling cold, yet physically quite warm. I have learned from past experience that this can mean an alter is cold even though I am not. I pulled on an extra blanket and woke my husband to give me some extra cuddles. By this stage I  figured that Baby was probably also feeling in need of some reassurance and protection. After cuddles and the extra blankets we went back to sleep.
I woke several hours later not to the sucking movement this time but to a biting movement. Baby had figured out that crackers were what was getting served so she needed to bite not suck. Some more crackers and back to sleep. This process was repeated again later. When my hubby got up at about 6.30am Baby was still quite restless and the crackers weren't doing it any more. I felt like she needed more soothing. The biting action wasn't stopping and she wouldn't let me get back to sleep.
I was trying to think of what would sooth an unsettled baby. Fortunately I make baby dolls and had just the day before bought some dummies for them. I grabbed one and shoved it in my mouth in the hope Baby would find it comforting. It was not really the right size for an adult mouth but the action of sucking was comforting and I was back to sleep in no time. Baby stuck around for several more hours (I had about 15hours sleep in total) and when I finally woke up this morning I felt her switch away and I didn't need the dummy any more.
I did have alters arguing about getting her to switch back earlier, but I said I was happy for her to stay forward as she is not often out and never gets a chance to have her needs met.
I feel like it was a very special time I had with her, and that it was nice to be able to finally take care of this very scared little baby. I feel a special bond with her now, and while I don't have any more hospital trips planned, I hope that I can get to spend some more time with her. She is a very special quiet little one that just needs to feel safe. I am hoping I helped last night.

This must all sound very strange to those of you on the outside of my world, but inside it all makes perfect sense. Slowly I am getting to know more and more of my Alters and why they are here. I feel good. It is a very nice feeling.

08 April, 2012

Friends

Back home now for nearly a week and back into the routine. I do miss those relaxing days up north but at the same time there is something to be said for familiar surroundings.
I have had a fun few days socializing with friends. As I said in my Queensland post, it can be hard to socialize with others who do not know anything about my condition or even that I have it. Yesterday I went to a friends 30th birthday party. She knows of my Disorder but I have not discussed it in detail with her. I had my excuse ready if I couldn't cope with the party any more, and I felt comfortable that I could leave at any time. As it turned out some old friends were also there, so I spent most of my time catching up with them. I wasn't switching at all and I enjoyed the whole afternoon, and I didn't leave early.
The day before I had spent the afternoon with another great friend who also has issues with dissociation. We had a great time and I felt very relaxed. We (my alters) were not all in agreement on going to her house but in the end it was a good move.
I spend a lot of time at home, partly because of the boys, and partly because that is where I am most comfortable. I enjoy my time here. I have plenty to keep my occupied, and I am not often alone. (some might say with 20 odd alters in my head I am never alone) But I forget how good it can feel to spend time with friends. Good friends who accept me as I am (disorder and all) or friends who don't know about the disorder and so don't expect any different.
Being a multiple it can be hard to hang out with others. If I invite someone over, it is not uncommon for another Alter to be out when my guest arrives. This alter may not be interested in socializing at all, let alone with this invited guest. Part way through the visit something may trigger a change in alters and suddenly the event can take on a whole different feel. I have often found myself chatting with someone and suddenly be triggered and find an alter out that is tired and just wants to curl up in bed and talk to no one. The can be rather difficult 5 mins into the guests visit.
Because I often feel the need to be perfect around others, there is also always the post socializing analysis. That is dissecting every conversation I have had over the evening and recalling the reactions from those around me. Did I say the wrong thing, next time I should not have said that, maybe I wore the wrong outfit, maybe I am too fat and shouldn't have even gone anyway. Did they really like me or were they just politely tolerating me. This can go on for some time and as I am sure you can imagine there are plenty of alters on the inside who will chime in with their opinion. As I generally spend most of my time feeling unattractive and unliked, you can imagine that this analysis does not end well. It is a wonder that I even venture out the front door again.
Having others who go through the same thing is always a great help. I discussed some of these things with a friend who has DID the other day. It gave me so many answers to my own behaviour. Because I have been this way for most of my life I don't even realize that what I am doing is part of the disorder. I, as usual, think everyone thinks and feels as I do.
Thank you to my dear friend for the afternoon at your house. Our open and real conversations about our condition was not only hilariously funny but also amazingly healing.
And to my other friends who know about my disorder but accept me as I am, Thank you too. This is a hard journey but you all make it so much easier.

03 April, 2012

Great news on intergration

There is a wonderful woman who I know who is also a multiple. She has been doing some great work with her therapist and making some big changes in her life. I don't know a lot about how her system works but she has told me a bit about who is there and some of their roles.
The other day she told me that one of her Alters had integrated. I find it so exciting as she is the first person I have known who has been through this experience and it was such a positive one the I felt really encouraged by it.
For those of you who don't know how it all works, I will do my best to explain it now.
When someone goes through trauma and gets DID their mind fractures into different parts , that we call Alters. These alters are separated by Dissociative barriers. These barriers prevent them from functioning together, sharing thoughts and skills, and in most cases will prevent them from knowing there are even other alters there. A bit like a house with different rooms and no one communicates with anyone not in their room.
Integration is when one or more of those walls or barriers comes down and the two alters can now become one and function together. They now share experiences, thoughts, actions, memories and emotions. 
Integration is some times thought of as getting rid of alters, but I do not like what that can mean. It means that a part of you must disappear, and some alters will do just that for a time because they think it is what is wanted or needed. This does not lead to healing, merely confusion and feelings of insignificance. All our alters are a part of us and are here for a reason. They were formed to help deal with something we didn't know how to deal with. They are all a part of the whole and all equally important. Each alter has their own set of skills, memories and abilities, if we lose the alter we lose what they bring to the system.
Integration is about bringing all these skills, memories and knowledge together into one functioning human being, who can access these skills whenever they need or want.
One of the parts that fascinates me the most with my friends partial integration, is that she says she can now feel her alter with her all the time. She has access to the alters feelings and strengths, they are now hers. The two have become one and it is expanding her abilities and how she functions. I am so very proud of her and I am excited about the road ahead for all of us with DID. To have the chance to be one with all those inside me and to be able to share all their skills and knowledge with ease is a very exciting thing. I suspect a long way off, but who knows.